Endometriosis South Coast is a charity and advocacy organisation dedicated to improving the lives of people affected by endometriosis and adenomyosis across the South Coast and the wider Hampshire and Isle of Wight region. Grounded in both lived experience and research, we work to ensure that people with gynaecological conditions are visible, heard, and meaningfully included within health and care systems.
We provide both in-person and virtual, peer-led support for people living with endometriosis and adenomyosis, creating safe and accessible spaces for connection, understanding, and shared experience. Alongside this, we deliver educational groups and resources developed in collaboration with healthcare professionals and subject-matter experts, supporting individuals to better understand their condition and navigate care. We also work with clinicians, employers, researchers, and system partners to address diagnostic delay, health inequalities, and gaps in care, with a strong focus on improving health-related quality of life through inclusive, trauma-informed, and evidence-based approaches.
A key achievement for Endometriosis South Coast is the completion of a PhD by our founder, whose doctoral research examined health-related quality of life, inequality, and exclusion in endometriosis care. This milestone strengthens our ability to bridge lived experience with rigorous academic research, ensuring our advocacy, education, and system-level engagement are evidence-informed as well as patient-led. Through this dual approach, we have contributed to nationally and internationally recognised research while continuing to grow a trusted regional support and advocacy presence.
Our best contact email address is:
admin@endometriosissouthcoast.com
Written By: HIVCA
